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Senior Director, Patient Outcomes Research - New York New York
Company: National Kidney Foundation Location: New York, New York
Posted On: 05/04/2024
National Kidney Foundation WHO WE ARE Fueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education, and accelerating change.WHAT WE BELIEVE INNKF's Mission is what we do, our Values are how we do it. - Accountability- Earn and Keep Trust - Collaboration-Work as a team - Communication- Empower with information - Community-Build stronger community - Compassion- Lead with care and respect - Impact-Focus on the missionYour Voice Matters: WHAT YOU'LL DOThis position is responsible for the oversight and expansion of NKF's activities and capabilities in conducting patient outcomes research, with a focus on the KidneyCARE--- Study. The KidneyCARE Study is the first national and international patient registry with the ability to collect both patient reported outcomes (PROs) and electronic health record (EHR) data to provide a full picture of the patient. The project will not only be patient interfacing but also researcher oriented with a strong emphasis on stakeholder engagement. It will lead to additional research opportunities through collaboration with Study partners and other external stakeholders. - Manages the day-to-day operational duties with Study contractors. This includes overseeing quality control, liaising with other NKF departments to contribute expertise, management of timeline, deadlines and overall cash flow and budget.
- Runs NKF coordination, management and strategic planning with health system partners to ensure seamless execution of front-end and back-end syncing. Manage the consent development process, legal process for access to data in addition to other contract elements.
- Explores and facilitates patient outcomes research opportunities, within the KidneyCARE Study and with external partners such as health networks and academic nephrology departments.
- Coordinates strategic planning among key experts, most importantly among governance committees: technology, data input and integration, data use and publication and steering committee.
- Aligns registry technology with educational, data collection, and website strategy in addition to future activities lending value to the overall registry.
- Develops and assures a continuity of clear written and verbal communication to internal project leads, governance chairs and members, and NKF leadership. Proactively communicates information to volunteers and staff as necessary.
- Creates and manages ongoing timelines for all phases of the Study expansion.
- Supervises the Patient-Centered Research Director
- Performs additional duties as required.WHAT WE OFFER
- Work/life Integration: Enjoy plenty of vacation time, sick leave, and holidays so you can recharge, regroup or reflect-and come back ready to tackle anything.
- Support for Your Health: We've got your back with top-notch medical, dental, and vision insurance plans for you and your loved ones.
- Peace of Mind: Rest easy knowing you're covered with life insurance and a 403(b) plan with matching company contributions to secure your future.
- Creative savings: Take advantage of flexible spending accounts to save on eligible healthcare and dependent care expenses.
- Easy Commuting: Reduce your stress with our commuter benefits program for transit and parking expenses.
- Support When You Need It: Access confidential counseling, support services, and resources through our Employee Assistance Program.
- A Chance to Spread the Word: Share the love and earn rewards by referring awesome folks to join our team.
- A Big Tent: We're all about creating a diverse and inclusive workplace where everyone feels valued, respected, and heard.
- Mission-Fueled Culture: Join a team that's passionate about making a difference and guided by values like integrity, compassion, and innovation.WHAT YOU'LL POSSESS
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